Post Acute Infection Syndrome (PAIS)

Post Acute Infection Syndromes (PAIS) is an umbrella term that encompasses a variety of chronic conditions that either persist or develop following an acute infection, such as Long Covid and ME/CFS.

While the majority of individuals recover swiftly from acute infections, typically within four weeks, there are some who experience prolonged symptoms. For these individuals, their recovery journey can be more complex and extended, necessitating further attention and care.

Symptoms

Although there is currently no known cure or universally accepted treatment for these conditions, it is acknowledged that effective symptom management can significantly enhance individuals’ experiences, overall health, and quality of life. Most individuals will encounter one or more of the common symptoms listed below.

Fatigue – feeling tired with less energy to carry out day-to-day activities
Breathlessness
Cough
Muscle pain
Chest pains
Brain Fog
Difficulty sleeping
Anxiety
Problems with speech
Digestive and dietary changes – including abdominal pain, feeling sick, diarrhoea weight loss or reduced appetite

This is not an exhaustive list. Further reading can be found at:

Support

Work has been undertaken to develop local services that support people experiencing symptoms of ME/CFS and post-viral PoTS, building on the previously named Long Covid service. Recognising the complexity and diversity of symptoms, and the unique needs and experiences of each individual, the new Forth Valley PAISS service provides tailored advice on managing and alleviating symptoms for young people aged 16 and over, as well as adults diagnosed with Long Covid, ME/CFS, post-viral PoTS, and other exertion intolerance conditions.

The service offers a comprehensive range of practical and professional guidance to help individuals manage symptoms, improve quality of life, and enhance overall health and wellbeing. It includes information, advice, and referrals to existing services and support networks. All patients initially receive a one-to-one, face-to-face consultation, followed by subsequent sessions delivered either individually or in groups, in person or remotely, as appropriate.

The service can be contact at fv.PAISS@nhs.scot.

Referrals to the Forth Valley PAIS service can be made by healthcare professionals only.

The University of Stirling has undertaken extensive research on people’s experience of long Covid and created a range of resources. These include videos, audio clips and written extracts from interviews with people living with long Covid and covers topics like how to manage the impact on your family, work, social life and finances.

The Royal College of Occupational Therapy has produced tips and guides on managing extreme fatigue and conserving energy.

The Cuppa group was set up by two local women (Suzanne Grant and Noreen Walton) and can be contacted at longcovidcuppa@gmail.com. You can also visit their website at longcovidcuppa.org for more information.